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Yann Joly

McGill University

SCHOLARLY PAPERS

5

DOWNLOADS

348

TOTAL CITATIONS

0

Scholarly Papers (5)

1.

Identifying the Key Features of an Effective Non-Discrimination Policy: A Delphi Study

Number of pages: 22 Posted: 28 Mar 2024
McGill University, McGill University, New York University (NYU) - New York University, McGill University, McGill University, American University of Beirut, National University of Food Technologies, Universidad de Alcalá, Fundación Jiménez Díaz Hospital, University of Oslo, National Institutes of Health, Malaysia, University of Toronto - Institute of Health Policy, Management and Evaluation, National Institutes of Health, Malaysia, National Institutes of Health, Malaysia, The University of Hong Kong - University of Hong Kong, Dublin City University - School of Law and Government, Sage Bionetworks, National University of Ireland, Maynooth (NUI Maynooth) - Faculty of Law, University of Montreal, Universidad Central de Venezuela, McGill University, Yale University, Department of Molecular Biophysics and Biochemistry, University of Copenhagen - Centre for Advanced Studies in Bioscience Innovation Law (CeBIL), University of Quebec at Rimouski, Academia Sinica - Institute of European and American Studies, KK Women's and Children's Hospital, Yonsei University, University of Copenhagen - Copenhagen University, University of Minnesota - Twin Cities, University of Copenhagen - Centre for Advanced Studies in Bioscience Innovation Law (CeBIL), University of Northampton, University of Tasmania, University of Tasmania - Faculty of Law, National University of Advanced Legal Studies (NUALS), University of Iowa - College of Law, U of Louisville, Healthfox US Inc, McGill University, Campus Law Centre, Faculty of Law, University of Delhi, York University, Monash University, Life Sciences & Society Lab, Centre for Sociological Research, KU Leuven, McGill University - Centre of Genomics and Policy and McGill University
Downloads 161 (464,454)

Abstract:

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Genetic Discrimination, Genetics, Law, Human Rights, Health Policy

2.

The Advent of Forensic DNA Databases: It's Time to Agree on Some International Governance Principles!

Number of pages: 9 Posted: 16 Dec 2023
Diya Uberoi, Nicole Palmour and Yann Joly
McGill University, McGill University and McGill University
Downloads 66 (907,769)

Abstract:

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Genetics, forensics, DNA databases, human rights, criminal law

3.

Canadian Women’s Attitudes Toward Receiving Personalized Breast Cancer Risk Information: Insights from the PERSPECTIVE I&I Project

Number of pages: 40 Posted: 22 Sep 2025
affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, CHU de Quebec-Universite Laval, CHU de Quebec-Universite Laval, affiliation not provided to SSRN, CHU de Quebec-Universite Laval, University of Cambridge - Centre for Cancer Genetic Epidemiology, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, CHU de Quebec-Universite Laval, affiliation not provided to SSRN, University of Cambridge - Department of Public Health and Primary Care, affiliation not provided to SSRN, affiliation not provided to SSRN, The University of Manchester - Division of Evolution and Genomic Sciences, affiliation not provided to SSRN, McGill University, University of Toronto - University Health Network, affiliation not provided to SSRN, McGill University - Centre for Genomics and Policy, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, CHU de Quebec-Universite Laval, Université Laval - Department of Molecular Medicine and affiliation not provided to SSRN
Downloads 49 (1,074,648)

Abstract:

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Breast Cancer, personalized risk communication, breast cancer risk-stratified screening, Risk prediction

4.

Ethical Considerations for Forensic Genetic Frequency Databases

Number of pages: 12 Posted: 30 Mar 2024
University of the Western Cape, McGill University, Stellenbosch University, University of Minho, affiliation not provided to SSRN and University of Bern
Downloads 41 (1,170,409)

Abstract:

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Forensic genetic frequency databases, Databases, Forensic, Vulnerable population, Ethics, consent, Ethics Review Board, legacy data, Forensic Databases Advisory Board

5.

Game Over for Traditional Ethics? Gamification and New Frontiers in Health Research

Number of pages: 20 Posted: 27 Apr 2026
Yann Joly
McGill University
Downloads 31 (1,332,057)

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Gamification, Citizen science, Health research ethics, Informed consent, Participatory research, Data governance, Research governance, Benefit sharing